Wednesday, August 13, 2008

Autism, part deux

Speaking of Autism, there is an interesting article online (msnbc.com) that details a few cases of disruptive autistic kids (or young adults) that have met both friendly and not-so-accommodating reactions.

Click HERE for the article.

What do I think? I usually avoid taking my Grace to places I know she'll struggle. It's no fun for her and REALLY no fun for Abby and me. So many friends and family that haven't seen Gracie "melt down" don't understand how catastrophic it can be...and think we ought to push going to places like church and shopping.

We don't hide in the house, of course. We go to restaurants that are familiar to Grace and I usually have a game-plan discussion with Abby in case we have to beat a quick escape.

One thing that's important to me is that I like to avoid telling waitresses/hostesses that Grace has special needs. Folks are always kind...and mean well. But I end up spending time managing their expectations and anticipations and emotions about what might be helpful. Restaurant managers will inevitably appear and make double-triple sure that everything is ok. There's nothing that they need to do! It's enough to have to live with Autism every day...having to discuss it with folks...reassure them that we're ok...and field questions about Grace's disability...takes up my time and really only meets their needs. One regular restaurant had a waitress that always wanted to discuss the fact that god has a plan for Grace, and that we're in her prayers. SO NICE, but we're seeking normalcy...so we don't go to that diner anymore.

Of course, there are times when I need help. And I'll tell every able-bodied person within reach that we need help and/or special considerations. People have always been kind.

There have been a few occasions when people have reacted negatively to Grace's behavior, of course. One woman explained to her friend that "that little girl needs a spanking!" I did not engage with her. I can't be bothered to spend my time on baloney like that, right?

Here ends my sermon. (sorry)

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